This part is to help you, and your family or carer think about planning for the future
It is important to plan for the future.
Your family or carer will help you think about this using the ‘my future and end of life care plan’.
Even though it is hard it is important to talk about the future.
Dear Family/Carers
This information is to help you support the person you care for plan for their future. Even though it is difficult, it is really important to involve people in their own end of life planning.
Use the “My future and end of life care” leaflet to do this.
Information
My future and end of life care plan (St Lukes)
A booklet called “dealing with death”, for people with learning disabilities, which you can use to support other people you care for (SeeAbility)
A booklet called “Your feelings after someone dies”, designed for people with learning disabilities (Marie Curie).
Marie Curie has lots of information to help families and carers when someone dies (Marie Curie)
If you are worried or finding it difficult to help people understand, please let CLDT know at the next dementia review.
There is lots of other information online:
- Keeping people who have Down’s syndrome well before and during dementia – hard copy – Downs Syndrome Association
- Talking about death and dying to someone with dementia | Hospice UK
- Patients and carers | St Luke’s Hospice Plymouth
Easy Read resources:
Some images copyright © LYPFT